In 2017, my beautiful son Felix, who was 20, died suddenly and unexpectedly. He had epilepsy and was found dead in his room at university. His death was recorded as SUDEP – Sudden Unexpected Death in Epilepsy. The effect of his death has been life-shattering. I am doing all I can to raise awareness of SUDEP and raise funds for SUDEP Action – a small charity that does vital work in campaigning and funding research. SUDEP claims 21 lives a week, mostly in young adults and it is not known why it happens.