SUDEP

In 2017, my beautiful son Felix, who was 20, died suddenly and unexpectedly.   He had epilepsy and was found dead in his room at university.  His death was recorded as SUDEP – Sudden Unexpected Death in Epilepsy.   The effect of his death has been life-shattering.  I am doing all I can to raise awareness of SUDEP and raise funds for SUDEP Action – a small charity that does vital work in campaigning and funding research.  SUDEP claims 21 lives a week, mostly in young adults and it is not known why it happens.